Saturday, April 18, 2009
HG Affected My Sleep Big Time
Friday, April 17, 2009
Tuesday, April 14, 2009
I joined an HG study!
The HER Foundation is a non-profit organization seeking to help raise awareness about hyperemesis gravidarum. HER is currently in need of 1000 volunteers to begin their research on HG. If you did not have HG, please volunteer as the foundation needs you to be in the control group. For more information visit the foundation at www.hyperemesis.org.
The HG study is designed to identify mothers-to-be who were diagnosed with HG by the collection of DNA samples from salivathrough the mail at no cost or travel for volunteers and to search for genes and risk factors that may be potentially associated with the condition.
To be eligible, you must have suffered from HG and had treatment for your HG that includes i.v. hydration, TPN or other form of non-oral feeding (ie nasogastric feeding), OR both, and are able to recruit a friend with at least 2 pregnancies who has NOT suffered from HG to serve as a control. If you live in the United States and are interested, please contact Marlena Schoenberg Fejzo, PhD at nvpstudy@usc.edu.
The study hopes to find the genes and risk factors that contribute to Hyperemesis Gravidarum will lead to a better understanding of the causes of severe nausea and vomiting of pregnancy. It is there hope that it will be a first step in finding effective treatments or a cure.
Find out more about my personal experience with the study here....
Monday, April 6, 2009
Quality of Life
I couldn't get any sleep and most attempts left me restless. I would just force myself to sleep in short spells just to escape the nausea. I was not able to eat or drink anything and which would result in severe dehydration. I couldn't cook, or clean, or take care of myself properly yet, despite any of this, I was hopeful and looking forward to seeing my little bundle of joy after giving birth. I was treated for dehydration several times in the hospital, as this is main treatment plan. The other options are a choice of three medications to manage the nausea which I refused for fear of harming the baby.
Having this disease robbed me from enjoying the experience of being pregnant. My hope is to get the word out about this disease and to put an end to the needless suffering by finding the cause and the cure for HG.
Friday, April 3, 2009
I Went into Anaphylactic Shock
What is HG?
HG is still widely unknown. Learn why here....